Keeping Folks Informed About Chronic Illness

One of the important yet time-consuming parts of having someone in your family with a serious chronic illness is being able to keep other family members and friends informed about what is going on.

You’ll soon find that if you don’t have a good way to keep people informed that you’re going to spend a significant amount of your time telling and retelling the same information to folks that care and want to know.  And you’re also going to be spending time correcting incomplete or incorrect information as well.

So deciding on a good vehicle that allows you to provide the information once and yet keep everyone that wants to be informed up to date is valuable. There are several good ways to do that.

The first two are similar web-based products, CaringBridge and CarePages.  Both allow you to set up free webpages with photos, the background story, and updates, as well as providing a way for friends and family to provide messages in response.  Both also allow you to select from a variety of privacy levels, depending on your wishes.  Your friends and family can subscribe to email notices of updates.  These services are very easy to set up, requiring little if any tech knowledge.

Another good option is setting up a blog.  Blogger and WordPress are two leading services that provide free blogs, and both are relatively easy to set up and use.  The advantage of setting up your own blog is that you have more flexibility in design and how you use it.  A disadvantage can be that subscription by friends and family can be a little more challenging for those that are not tech savvy.  However, you can rather easily add the capability to subscribe by email to help them out.

I’m a big fan of all of these services, and currently I’m keeping up with a number of people through them.  If you’re not familiar with them, check them out.

  1. Allen Thyssen says:

    Thanks, Jim. Good stuff.

  2. Thanks for this reminder–because of it, I was able to track down some friends who are going through the discovery and treatment of a malignant brain tumor.

    Amy VanHuisen’s last blog post..3 Reasons Sudden Loss Hits Us So Hard

  1. There are no trackbacks for this post yet.