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<channel>
	<title>Difficult Seasons &#187; cancer</title>
	<atom:link href="http://difficultseasons.com/category/cancer/feed/" rel="self" type="application/rss+xml" />
	<link>http://difficultseasons.com</link>
	<description>Hope for dealing with difficult seasons of life.</description>
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		<title>DNR: Not the Result We Prayed For</title>
		<link>http://difficultseasons.com/2010/03/09/dnr-not-the-result-we-prayed-for/</link>
		<comments>http://difficultseasons.com/2010/03/09/dnr-not-the-result-we-prayed-for/#comments</comments>
		<pubDate>Wed, 10 Mar 2010 00:49:22 +0000</pubDate>
		<dc:creator>Jim Hughes</dc:creator>
				<category><![CDATA[cancer]]></category>
		<category><![CDATA[Chaplaincy and Pastoral Care]]></category>
		<category><![CDATA[Grief and Grieving]]></category>
		<category><![CDATA[hospital visits]]></category>

		<guid isPermaLink="false">http://difficultseasons.com/?p=1277</guid>
		<description><![CDATA[Yesterday as I was making my chaplaincy visits, I visited a man and his wife whom I&#8217;ve grown to respect greatly. He was in the process of signing his out-of-hospital DNR for entering hospice care. He has battled a very rare type of cancer valiantly, but the cancer is winning in this life. His words [...]]]></description>
			<content:encoded><![CDATA[<p>Yesterday as I was making my chaplaincy visits, I visited a man and his wife whom I&#8217;ve grown to respect greatly. He was in the process of signing his out-of-hospital DNR for entering hospice care. He has battled a very rare type of cancer valiantly, but the cancer is winning in this life. His words were few. &#8220;It&#8217;s time,&#8221; he said, speaking of entering hospice care.</p>
<p>This is not the result any of us wanted.</p>
<p>We have prayed with great faith for healing, knowing it was against the odds of nature all along. If pure willpower could win this fight, this man would have won. If being greatly loved by so many people could make a difference, it would have.</p>
<p>After he signed the paper and the witness and the hospice representative left the room, we didn&#8217;t have words to give each other in conversation that would make any of us feel better or deal better. So we prayed to the One who understands how we feel, the One who can carry us through these difficult times.</p>
<p>The prayer I spoke was one of lament, telling God that this was not the result we wanted, admitting our pain, our frustration. But I also found words to express our love and faith to God in spite of not getting what we wanted, our total trust in Him to provide for our best good. And I also uttered a number of requests &#8212; for His care and protection and love for this family as they continue down a most difficult road.</p>
<p>As people of faith, we frequently pray for healing even in the face of long odds. We are praying for a miracle, for an outcome that flies in the face of logic, of reason, of grim statistics of nature.</p>
<p>Sometimes, admittedly infrequently, God grants our deep desire. I rejoice, and my resolve to keep praying for divine intervention is strengthened.</p>
<p>More often, He doesn&#8217;t. Then I express my lament, my sadness at the pain of this life. My resolve to continue praying for divine intervention is not lessened, but I am reminded that I, like Job of old, don&#8217;t know the answers.</p>
<p>I was reminded of Job yesterday, that in spite of pain and frustration, that he didn&#8217;t lose his integrity.</p>
<p>And that it was time to give that helpful book a fresh read.</p>
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		<title>Perspective Is a Big Deal When Dealing With Fear</title>
		<link>http://difficultseasons.com/2009/07/20/perspective-is-a-big-deal-when-dealing-with-fear/</link>
		<comments>http://difficultseasons.com/2009/07/20/perspective-is-a-big-deal-when-dealing-with-fear/#comments</comments>
		<pubDate>Tue, 21 Jul 2009 05:22:18 +0000</pubDate>
		<dc:creator>Jim Hughes</dc:creator>
				<category><![CDATA[cancer]]></category>
		<category><![CDATA[Caregiving]]></category>
		<category><![CDATA[Illness]]></category>
		<category><![CDATA[Self Care]]></category>
		<category><![CDATA[diabetes arthritis]]></category>
		<category><![CDATA[dying]]></category>
		<category><![CDATA[Fear]]></category>
		<category><![CDATA[heart disease]]></category>
		<category><![CDATA[job loss]]></category>
		<category><![CDATA[perspective]]></category>
		<category><![CDATA[purpose]]></category>
		<category><![CDATA[WSJ]]></category>

		<guid isPermaLink="false">http://difficultseasons.com/?p=1119</guid>
		<description><![CDATA[Perspective is a big deal, no matter what we&#8217;re dealing with in our lives. For example, we can have cancer, and our perspective may be, &#8220;I&#8217;m dying of cancer.&#8221; Or, we can choose to have a different perspective:  &#8221;I&#8217;m living with cancer until I pass.&#8221; This example is from an article in today&#8217;s Wall Street [...]]]></description>
			<content:encoded><![CDATA[<p>Perspective is a big deal, no matter what we&#8217;re dealing with in our lives.</p>
<div id="attachment_1121" class="wp-caption alignleft" style="width: 210px"><a href="http://difficultseasons.com/wp-content/uploads/2009/07/photo-1.jpg"><img class="size-medium wp-image-1121" title="photo-1" src="http://difficultseasons.com/wp-content/uploads/2009/07/photo-1-200x300.jpg" alt="Tweet About WSJ Article" width="200" height="300" /></a><p class="wp-caption-text">Tweet About WSJ Article</p></div>
<p>For example, we can have cancer, and our perspective may be, &#8220;I&#8217;m dying of cancer.&#8221;</p>
<p>Or, we can choose to have a different perspective:  &#8221;I&#8217;m living with cancer until I pass.&#8221;</p>
<p>This example is from an <a title="WSJ article on dealing with cancer" href="http://online.wsj.com/article/SB10001424052970203547904574276434196118914.html" target="_blank">article</a> in today&#8217;s Wall Street Journal discussing a program for helping cancer patients deal with their illness.  While it&#8217;s dealing with cancer patients being able to find meaning for their lives in the face of their illness, it has a lot of value for those of us facing other challenges.  I highly recommend that you read it.</p>
<p>With cancer, nearly everyone&#8217;s biggest fear is dying.  But it&#8217;s usually unspoken, unsurfaced even.  Once it&#8217;s surfaced, the fear can be dealt with.  One can choose to adopt a perspective that gives life meaning and purpose, that takes control away from the fear.</p>
<p>But this principle is much more widely applicable.</p>
<p>Any chronic illness &#8212; heart disease, diabetes, arthritis, and any of so many others &#8212; generates fears.  What if I have another heart attack?  What if I have to live in a wheel chair?  What if I &#8230;?</p>
<p>Your fear may not be from a medical condition, but from a situational condition.  What if I lose my lose the ability to live at the standard of living I&#8217;ve become used to?  What if I lose my job?  What if I &#8230;?</p>
<p>So what fears are you, or those you love, living with that haven&#8217;t been dealt with?</p>
<p>How could you, or could they, benefit from a change of perspective?</p>
<p>Worth some thought!</p>
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		<title>Grieving: Expressing in Words What We&#8217;ve Lost</title>
		<link>http://difficultseasons.com/2009/07/13/grieving-expressing-in-words-what-weve-lost/</link>
		<comments>http://difficultseasons.com/2009/07/13/grieving-expressing-in-words-what-weve-lost/#comments</comments>
		<pubDate>Mon, 13 Jul 2009 08:16:27 +0000</pubDate>
		<dc:creator>Jim Hughes</dc:creator>
				<category><![CDATA[cancer]]></category>
		<category><![CDATA[Chaplaincy and Pastoral Care]]></category>
		<category><![CDATA[hospital visits]]></category>
		<category><![CDATA[esophageal cancer]]></category>
		<category><![CDATA[grief]]></category>
		<category><![CDATA[longing]]></category>
		<category><![CDATA[loss]]></category>
		<category><![CDATA[prayer]]></category>
		<category><![CDATA[twitter]]></category>

		<guid isPermaLink="false">http://difficultseasons.com/?p=1101</guid>
		<description><![CDATA[When we have suffered a loss and as we move through the grieving that follows, we often express in words what we&#8217;ve lost. I was reminded that sometimes how we describe our loss surprises others when I saw this Twitter post by Karen Putz (@deafmom) earlier this week.  Karen&#8217;s dad has esophageal cancer, and hasn&#8217;t [...]]]></description>
			<content:encoded><![CDATA[<p>When we have suffered a loss and as we move through the grieving that follows, we often express in words what we&#8217;ve lost.</p>
<div id="attachment_1102" class="wp-caption alignleft" style="width: 210px"><a href="http://difficultseasons.com/wp-content/uploads/2009/07/photo.jpg"><img class="size-medium wp-image-1102" title="photo" src="http://difficultseasons.com/wp-content/uploads/2009/07/photo-200x300.jpg" alt="Twitter Post by Karen Putz" width="200" height="300" /></a><p class="wp-caption-text">Twitter Post by Karen Putz</p></div>
<p>I was reminded that sometimes how we describe our loss surprises others when I saw this Twitter post by Karen Putz (@deafmom) earlier this week.  Karen&#8217;s dad has esophageal cancer, and hasn&#8217;t really been able to eat normally for the last couple of months.  So in retrospect, his response to the doctor is right on, but it probably surprised everyone when he said it.</p>
<p>As we&#8217;re grieving a loss, we tend to express that loss in ways that are highly personal to us &#8212; in ways that truly describe what we miss dearly, and would like to have back.  It&#8217;s part of the <strong>longing for</strong> phase of grief.  Karen&#8217;s dad longs to be able to eat his wife&#8217;s cooking again &#8212; both because it&#8217;s good, and because that would mean that he&#8217;s dealt successfully with his cancer.</p>
<p>One of my favorite questions while visiting patients in the hospital has become, &#8220;What one thing are you praying for today?&#8221;</p>
<p>I ask that question for lots of reasons.  It helps me target my prayer with the person to pray specifically for what they want most that day.  There&#8217;s often a powerful connection between us as we join together in prayer with the words, &#8220;God, my prayer is _____ &#8216;s prayer.&#8221;  And it often provides an opportunity to talk about the real issue the person is struggling with that day.</p>
<p>Karen&#8217;s post reminded me of a recent visit.  When I first entered the room, most of my conversation was with the patient&#8217;s husband.  The patient was having some pain, and just wasn&#8217;t engaging.  But when I asked her if she&#8217;d like to pray, and specifically what her biggest request was, she jumped in and took over the conversation.  Her request was simple:  &#8221;I want to be able to go back home and take care of my 101-year old mother, and help my sister get there so she can help.&#8221;  It represented both what she had lost, and what was important to her.  As we prayed together, she verbally reinforced my words with her &#8220;Amen&#8217;s&#8221; and &#8220;Yes, Lord&#8217;s.&#8221;</p>
<p>It was a special moment for all of us.  Her greatest desire had been heard and then expressed in prayer.</p>
<p>Karen&#8217;s post is one reason I&#8217;m active on Twitter &#8212; I&#8217;m always learning, and often being reminded of what&#8217;s important.  Asking good questions like Karen&#8217;s dad&#8217;s doctor did is important.</p>
<p>Thanks for the Twitter post, Karen.  And I am praying that your dad gets to eat your mom&#8217;s good cooking soon!</p>
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		<title>My good news is tempered by awareness.</title>
		<link>http://difficultseasons.com/2009/06/24/my-good-news-is-tempered-by-awareness/</link>
		<comments>http://difficultseasons.com/2009/06/24/my-good-news-is-tempered-by-awareness/#comments</comments>
		<pubDate>Wed, 24 Jun 2009 13:51:29 +0000</pubDate>
		<dc:creator>Jim Hughes</dc:creator>
				<category><![CDATA[cancer]]></category>
		<category><![CDATA[Caregiving]]></category>
		<category><![CDATA[Personal]]></category>
		<category><![CDATA[awareness]]></category>
		<category><![CDATA[good news]]></category>
		<category><![CDATA[joy]]></category>

		<guid isPermaLink="false">http://difficultseasons.com/?p=1080</guid>
		<description><![CDATA[Late Monday afternoon, we received really good news from Dad&#8217;s doctor.  The pathology report on the tumors and surrounding tissue removed from Dad&#8217;s bladder last week turned out to be a noninvasive, non-aggressive type of cancer, and it had been completely removed.  That means that he doesn&#8217;t need additional surgery or chemo or radiation and [...]]]></description>
			<content:encoded><![CDATA[<p>Late Monday afternoon, we received really good news from Dad&#8217;s doctor.  The pathology report on the tumors and surrounding tissue removed from Dad&#8217;s bladder last week turned out to be a noninvasive, non-aggressive type of cancer, and it had been completely removed.  That means that he doesn&#8217;t need additional surgery or chemo or radiation and can just be checked every three months for reoccurrence.</p>
<p>As my daughter Sara said on hearing the news, &#8220;The quality of life just got better for all of us.&#8221;</p>
<p>We&#8217;re certainly rejoicing in this unexpected good news.  Our thankfulness is hard to even express.</p>
<p>But my joy and thankfulness is tempered by awareness of what is happening to others.</p>
<ul>
<li>That same evening Eloise and I attended the viewing for a dear friend, spending some bittersweet time with his wife. They were like extra grandparents for our kids when they were young, even keeping all three to allow us a special trip to Amsterdam.  Less than a week elapsed between his cancer diagnosis and his death.</li>
<li>At the same time as our good news was being broadcast in our church&#8217;s prayer email, the news was also sent out that a friend&#8217;s mom diagnosed with lymphoma six weeks ago was going home with hospice care.  She passed peacefully last night.</li>
<li>I did chaplaincy rounds yesterday afternoon at M.D. Anderson, spending time with several people who have not received good news.</li>
</ul>
<p>My awareness makes me realize all the more how special good news is, and it fuels my thankfulness.</p>
<p>My awareness also makes me more compassionate to friends and sojourners whose news is not good.</p>
<p>And I understand better that life is a bittersweet mixture of rejoicing with those who are rejoicing, and mourning with those who are mourning, and that both can be happening at the same time.</p>
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		<title>Personal Caregiving: Some of This Week&#8217;s Activities</title>
		<link>http://difficultseasons.com/2009/06/21/personal-caregiving-this-week/</link>
		<comments>http://difficultseasons.com/2009/06/21/personal-caregiving-this-week/#comments</comments>
		<pubDate>Mon, 22 Jun 2009 04:02:21 +0000</pubDate>
		<dc:creator>Jim Hughes</dc:creator>
				<category><![CDATA[cancer]]></category>
		<category><![CDATA[Caregiving]]></category>
		<category><![CDATA[Personal]]></category>
		<category><![CDATA[dad]]></category>

		<guid isPermaLink="false">http://difficultseasons.com/?p=1076</guid>
		<description><![CDATA[This promises to be a busy week helping Dad with his medical things. Monday morning Dad&#8217;s having a colonoscopy.  He&#8217;s had some concerning symptoms, so my prayers are for negative findings, and safety during the procedure. It&#8217;s also probable that we&#8217;ll get the pathology report Monday on the two tumors removed from Dad&#8217;s bladder last [...]]]></description>
			<content:encoded><![CDATA[<p>This promises to be a busy week helping Dad with his medical things.</p>
<p>Monday morning Dad&#8217;s having a colonoscopy.  He&#8217;s had some concerning symptoms, so my prayers are for negative findings, and safety during the procedure.</p>
<p>It&#8217;s also probable that we&#8217;ll get the pathology report Monday on the two tumors removed from Dad&#8217;s bladder last week.  We&#8217;d love for it to prove his doctor&#8217;s opinion that the tumors are an aggressive cancer wrong, but should it not, it will start in process setting up appointments for followup diagnostic testing and consultations.</p>
<p>He also has an appointment this week with his audiologist.  We&#8217;re hoping his hearing aids can be tuned or repaired to get his hearing back to where it was a few months ago.</p>
<p>By the way, for a guy that&#8217;s nearing 85, Dad&#8217;s amazing in so many ways.  He bounced back from Wednesday&#8217;s procedure in rapid fashion, took care of several business items himself later in the week, and was at worship and class this morning doing his regular visiting with lots of folks.</p>
<p>And also, we&#8217;ll actually celebrate Father&#8217;s Day sometime during the week.  Today he was on his liquid diet and doing the prep for tomorrow&#8217;s procedure.  I suspect he&#8217;ll be ready for a nice dinner one evening soon.</p>
<p>Thanks for keeping us in your thoughts and prayers as we navigate some new territory for us.  I&#8217;ll post updates as we progress through the week.  Thanks for reading, and I hope your week is blessed.</p>
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		<title>Tomorrow&#8217;s an Early Morning</title>
		<link>http://difficultseasons.com/2009/06/16/tomorrows-an-early-morning/</link>
		<comments>http://difficultseasons.com/2009/06/16/tomorrows-an-early-morning/#comments</comments>
		<pubDate>Wed, 17 Jun 2009 02:57:27 +0000</pubDate>
		<dc:creator>Jim Hughes</dc:creator>
				<category><![CDATA[cancer]]></category>
		<category><![CDATA[hospital visits]]></category>
		<category><![CDATA[Illness]]></category>
		<category><![CDATA[Personal]]></category>
		<category><![CDATA[dad]]></category>
		<category><![CDATA[hospital]]></category>

		<guid isPermaLink="false">http://difficultseasons.com/?p=1069</guid>
		<description><![CDATA[Tomorrow&#8217;s going to be an early morning.  I&#8217;m supposed to have Dad at the hospital by 6:00 a.m. for his procedure. I&#8217;ve never been a fan of early mornings.  Even for fishing, although that&#8217;s about the best reason I can think of for getting up early.  Eloise and I enjoy late evenings and slow starts [...]]]></description>
			<content:encoded><![CDATA[<p>Tomorrow&#8217;s going to be an early morning.  I&#8217;m supposed to have Dad at the hospital by 6:00 a.m. for his procedure.</p>
<p>I&#8217;ve never been a fan of early mornings.  Even for fishing, although that&#8217;s about the best reason I can think of for getting up early.  Eloise and I enjoy late evenings and slow starts to the morning.</p>
<p>Tomorrow morning&#8217;s difficult for another reason.  Dad&#8217;s procedure is to remove a tumor from his bladder.  The doctor seems confident it&#8217;s cancer.</p>
<p>Fortunately, the procedure itself is quick, although performed under anesthesia.  It only takes about 30 minutes to perform, and then after a couple of hours to let the anesthesia effects dissipate, he will be able to go back to his apartment.</p>
<p>We&#8217;ll appreciate your thoughts and prayers as we take this step which will help us learn what&#8217;s next.</p>
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		<item>
		<title>&#8220;Your Dad Has Cancer&#8221;</title>
		<link>http://difficultseasons.com/2009/06/07/your-dad-has-cancer/</link>
		<comments>http://difficultseasons.com/2009/06/07/your-dad-has-cancer/#comments</comments>
		<pubDate>Mon, 08 Jun 2009 03:51:49 +0000</pubDate>
		<dc:creator>Jim Hughes</dc:creator>
				<category><![CDATA[cancer]]></category>
		<category><![CDATA[Caregiving]]></category>
		<category><![CDATA[dad]]></category>
		<category><![CDATA[Faith]]></category>

		<guid isPermaLink="false">http://difficultseasons.com/?p=1060</guid>
		<description><![CDATA[&#8220;Your dad has cancer&#8221; are words we never want to hear.  But in fact, those are the words the doctor spoke when he called me Friday. My dad, who is approaching his 85th birthday, is happily quite independent.  We went through a spell a few years ago when that was not the case.  He was [...]]]></description>
			<content:encoded><![CDATA[<p>&#8220;Your dad has cancer&#8221; are words we never want to hear.  But in fact, those are the words the doctor spoke when he called me Friday.</p>
<p>My dad, who is approaching his 85th birthday, is happily quite independent.  We went through a spell a few years ago when that was not the case.  He was quite dependent on me.</p>
<p>But for the last year or so, he has been functioning quite independently.  That includes scheduling and going to his own doctor&#8217;s appointments.  In fact, I was unaware that he was visiting his urologist on Friday.</p>
<p>So the call from the doctor&#8217;s office came out of the blue.  I was in the process of mowing, and was just taking a break when the call came.</p>
<blockquote><p>Mr. Hughes, your dad is here, and this morning I scoped his bladder to determine the cause of his frequent urination and urgency.  He has a tumor in his bladder.  If you asked me to guess, I&#8217;d say it was an aggressive cancer.  We&#8217;ll schedule a procedure to remove it and get a pathology report.</p></blockquote>
<p>I asked a question or two, and asked that he also talk to my daughter, a nurse practitioner at M.D. Anderson Cancer Center.</p>
<p>It&#8217;s Sunday night as I write this, and I&#8217;m still in the early stages of processing what I heard mid-day Friday.  But here are some of the things that have been running through my mind.</p>
<ul>
<li>This is more evidence that life&#8217;s not fair.  Dad has survived two wives who both died of cancer.  It doesn&#8217;t seem fair that he should have to battle cancer too.</li>
<li>I spend a lot of time with cancer patients.  I really don&#8217;t want my dad to be a cancer patient.  I don&#8217;t want to be a cancer caregiver.</li>
<li>Maybe because I know a lot about cancer, this won&#8217;t be as hard as if I were a novice.  Then again, maybe it&#8217;s gong to be harder because of my knowledge.</li>
<li>None of us gets an exemption from life&#8217;s struggles.  Being an oncology nurse practitioner doesn&#8217;t exempt your family from cancer.  Serving as a lay chaplain to cancer patients doesn&#8217;t get an exemption either.</li>
<li>Dad&#8217;s doing better with this news than I am.  He&#8217;s been expecting everything that comes along to be cancer.  I think that&#8217;s because he saw Mom develop it, and then his second wife, Carol.</li>
<li>We really don&#8217;t know what to expect until we get the pathology report.</li>
<li>I&#8217;m going to have to work a lot harder on my own self care.  I&#8217;m going to have to take my advice more seriously.</li>
<li>This is not a good time for me to take on additional care giving duties.  I&#8217;m already kind of full up.  I don&#8217;t guess that matters a whole lot, however.</li>
</ul>
<p>I&#8217;m trying to take this news as much in stride as I can.  I&#8217;ve spent time in prayer about it.  I&#8217;ve asked my church family to also pray about it.</p>
<p>Because through all of the other thoughts I&#8217;ve had the last few days, one predominates.  Dad is in God&#8217;s hands.  This whole situation is in God&#8217;s hands, as are all of our situations.  Whatever is ahead, we will be sustained.</p>
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