This is not the result any of us wanted.

We have prayed with great faith for healing, knowing it was against the odds of nature all along. If pure willpower could win this fight, this man would have won. If being greatly loved by so many people could make a difference, it would have.

After he signed the paper and the witness and the hospice representative left the room, we didn’t have words to give each other in conversation that would make any of us feel better or deal better. So we prayed to the One who understands how we feel, the One who can carry us through these difficult times.

The prayer I spoke was one of lament, telling God that this was not the result we wanted, admitting our pain, our frustration. But I also found words to express our love and faith to God in spite of not getting what we wanted, our total trust in Him to provide for our best good. And I also uttered a number of requests — for His care and protection and love for this family as they continue down a most difficult road.

As people of faith, we frequently pray for healing even in the face of long odds. We are praying for a miracle, for an outcome that flies in the face of logic, of reason, of grim statistics of nature.

Sometimes, admittedly infrequently, God grants our deep desire. I rejoice, and my resolve to keep praying for divine intervention is strengthened.

More often, He doesn’t. Then I express my lament, my sadness at the pain of this life. My resolve to continue praying for divine intervention is not lessened, but I am reminded that I, like Job of old, don’t know the answers.

I was reminded of Job yesterday, that in spite of pain and frustration, that he didn’t lose his integrity.

And that it was time to give that helpful book a fresh read.

Dog Visit in Hospice

Tomorrow it will be four weeks since we got the call that Steve had been sent to the hospital in an ambulance, followed a few days later by a diagnosis of end-stage liver disease and a prognosis of three weeks to three months to live.

The next week he was moved to a residential hospice. Two weeks ago tonight, we had a call that he was not expected to live through the night. But he did.

A week ago we were back down visiting him, fixing him a pie, and taking his dogs to visit him. He didn’t move from the bed. In fact, he didn’t even sit up. We had a few one sentence conversations.

The hospice doctor felt that his condition had stabilized however, and plans were underway for Steve to move to a residential hospice facility for less critically ill patients.

Tuesday, after we were back home, Steve called me and we had a very lucid ten-minute conversation — something that hadn’t happened at all during our visits. And he has continued making phone calls, and having long conversations, all week.

Friday he was able to get up and walk with assistance. Saturday he was able to walk with one cane and go to a nearby BBQ place for lunch with his brother.

It’s been a strange, stressful, roller coaster ride so far. We’re thankful Steve is enjoying some better days, sort of an unexpected bonus for him. But even that adds to the stress, trying to manage contingencies, handling location changes, dealing with his changing needs.

It’s a reminder that dying is an unpredictable and individual thing.

We can’t know what things will happen next, only that they’re unpredictable. So we take one day at a time, all too aware that we’re not in control.

Thanks so much for those who have provided words of encouragement and support and especially prayers. It helps keep us going.

© Jim Hughes 2010

We’re back in Florida to visit Eloise’s brother Steve who’s in hospice.

When we made the reservations over a week ago, we didn’t really know if he’d still be alive. And in fact, last Sunday night, the hospice folks really didn’t think he’d make it through the night. But he’s rallied, and we got to spend some good time with him today.

What I noticed most was how aware he was of our presence, and that he heard everything we said, even when we thought he was asleep. He’s having a hard time putting words to his thoughts, and it’s very difficult to understand him, but we managed to have some short conversations.

I was reminded how important presence is — whether there is a conversation or not. Steve mostly slept this afternoon, and Eloise and I would read or just sit. But every so often, Steve would open his eyes and look at us, and every once in a while he’d say something or try to answer a question.

I could tell he’s glad we’re here to spend some time with him. And I’m glad too.

© Jim Hughes 2009

Our family is in the midst of crisis. I really don’t know any other way of starting to write about all of this.

My wife’s brother Steve is dying. He has end-stage liver disease, the result of alcoholism.

The crisis began Monday a week ago at 9:00 am. We received a call from his friends who he had called to come pick him up so that he could move in with them. They quickly figured out that he was too sick for them to care for, put him in an ambulance to be taken to the local hospital, and in spite of his instructions not to call us, did.

Steve has been essentially estranged from the rest of the family for lots of years by his choice. We all last saw him three years ago when he came to his mother’s 80th birthday celebration. And we had seen him a couple of times in the ten years previous to that. In recent years, he has talked regularly with his mom by phone, and occasionally with us.

His estrangement has been to keep a number of things including his alcoholism hidden from the family, especially his mom. A couple of years ago his liver problems became so serious that he had a surgical procedure to improve his condition. Initially none of us knew about it except our daughter Sara, a nurse practitioner, who he discussed the medical things with. He swore her to secrecy, and he made her his health care power of attorney. After about a week of struggling, she told us and we were able to talk to and support him as he went through the procedure. But even so, he was adamant that his mom not know. The procedure was quite successful, and although we were aware that he was having financial difficulties, we were unaware that his physical condition had been deteriorating.

So the call last week was without warning. I can’t say, however, that it was unexpected.

What we learned from the call was simple. He was very sick, he had no money, no insurance, had abandoned his apartment, and had no one to take care of him. That’s pretty much a crisis.

There’s too much to try to put in one post, so consider this just an introduction to a number of posts that will follow. I will tell you that God has blessed us in countless ways during this time. Steve has received excellent care and is in a wonderful hospice as I write this tonight.

I need to write about this experience for me. Writing is one of the primary ways I know what I’m thinking.

But I know it’ll also be helpful to some other folks. As we’ve shared what’s going on with our friends and church, we’ve been surprised by the number of people who have or are going through similar situations. So I hope you’ll feel free to comment and journey with me through the posts that will follow.

Suddenly I was flooded with memories of Christmases with similar plates filled with fudge and divinity.

Mom always fixed both. The fudge was relatively easy. The divinity was tricky. But for her, and I think for others of her generation, making candy was part of the extravagance of celebrating Christmas. My mother-in-law always seems to do the same. Maybe it came from growing up in the depression, where such things were luxuries, where meat was only part of a meal once a week. My wife and daughter-in-law from time to time continue the tradition.

I hadn’t realized that it’s been missing in recent years until I saw the plate. Mom’s been gone almost seven years, and Reba has been coming for Christmas at our house for the last several years, although she sometimes brings candy.

Maybe I need to see if I can whip up some fudge and/or divinity this year. Everyone will be here, and there are some new generations that need to experience having some homemade candy sitting around — and to hear stories about grandmothers and great grandmothers who showed extravagance through making homemade candy.

A Service of Remembrance is something our church has done for lots of years on the Sunday before Christmas. It gives us an opportunity to come together and say out loud that there are dear people from our lives that are missing as we celebrate the holidays. Some of those we have lost died this year, and our pain is still intense. Some passed years ago, but there is still a hole in our hearts that can’t be filled.

The service itself is simple. We sing a few songs together, we listen to some other songs. We pray a prayer of remembrance together. We have responsive readings of scripture that emphasizes the hope we share. And the central part of the service is the lighting of the candle of remembrance, after which each person takes turns coming to the front of the chapel and naming the person or persons they’re remembering this year.

We recognize and remember that the reason for the season, the first coming of Jesus, provides the hope of our being reunited with those who have gone before.

After the service, we hang around, sharing some seasonal refreshments, some hugs, and some stories. We are bound together by our feelings of loss and hope.

It’s an emotional time, but amazingly healing. It’s an important time for many of us.

May you be blessed with wonderful memories, reassuring hope, and wonderful friends this Christmas season!

Fragile

My friend Virgil Fry, Executive Director of Lifeline Chaplaincy, wrote a really good post on here and now this week. I especially found his words about holding those we love vs. clinging to those we love helpful.

I hope you enjoy it!

Note: the photo has nothing to do with the post, but I thought you might enjoy seeing what Fall looks like in Houston this year.

Please be mindful of the things you say or ask, when my children are present. They don’t always need to hear all of the facts. If you want me to be honest, don’t ask sensitive questions in front of my children. I may have to give you a false answer for their sake.

Please don’t share your views concerning my spouse’s final destination. You are not God. It causes even more heartache for me when you imply that he will pay for eternity for his choices. I still care about him.

Please don’t tell me that the death of my spouse has somehow made your life better in some way – by causing a positive change to occur, for example. Not yet. I’m happy that it has worked out that way for you, but I’m not ready to hear it – my life is falling apart. As wrong as it sounds, it is too early for me to hear how his death has made things better for you.

Forgive me when I seem cold ,or angry, or indifferent. My emotions change quickly. I can’t always identify them myself or understand them either. All I know is that sometimes I feel hurt, anger, sadness, confusion or nothing at all.

I feel hurt that we weren’t enough to keep him here. I feel hurt because I can’t erase the pain that my children feel.

I don’t expect you to have the “right” words to say. I don’t know the right words to say either. I am thankful for your effort and your willingness to try. Try not to avoid us. It’s noticeable… even when you don’t realize it.

If you have a good memory or a funny story about something he did, share it with us. If you have a picture of him, we’d love to see it. We still talk about him. Add to our memory bank.

We are just trying to survive suicide. We are going through the motions right now. We are surviving day by day. Sometimes hour by hour, moment by moment. Be patient with us.

Give me a hug. I need human touch. Tell me things will be okay someday in the distant future. I need to hear that there is hope. Remind me that God is near. Remind me that God does care about my family and me. I want to believe it.

Write me a letter to share your thoughts/experiences with me. I can read letters again and again until I understand. Don’t be offended if I screen my phone calls. I don’t always feel like talking. If you know I’m having a hard day, show up at my house. Just sit with me. We don’t have to talk. Just sit with me and remind me that you are there for support. Don’t ask me to tell you what I need you to do. Just find something, and do it. Take my children out for the day. Mow my yard. Help me clean out a closet or sort through his things.

Give me a call just to let me know you are still thinking about and praying for our family. Or send me an email. I think and can respond on my own time.

Send a card. At first, there were so many cards. Now, not so many. But…the cards I receive now mean that people still care. People are still praying for our family. I have a difficult time with prayer right now. It’s nice to know someone out there is praying for us.

Feel free to invite me to an activity. I will probably go – and be glad not to have to worry about planning/arranging it. It will allow me to forget for awhile. If I really don’t feel up to it, I’ll tell you.

Just be around. Be around, not to find out information – just to be a friend. If I share something personal, don’t share it with others. Don’t betray my trust or I will never share again.

———–

Continued tomorrow